Welcome
Rett Syndrome
About Us
News
C2C Relay
C2C Relay pics
Newsletters and forms
Accounts
Contact
Links


amy_mcleod_stroller_small.jpg

Untitled Document

What is Rett Syndrome?

Rett Syndrome describes the disability of a person who suffers from a very early and specific failure in brain development. Most of the people known to have Rett disorder are girls but it can also occur in boys. At least 1 in 10,000 girls is affected but the number of boys is not yet known.

A person with Rett Syndrome has difficulty in walking and in using her hands, even to feed herself, and her joint movements are apt to become restricted. Only a few have words and epileptic seizures may occur. In spite of these difficulties people with Rett Syndrome are alert, attractive people, smiling, enjoying company and wanting to communicate. 

Ongoing Research

Research is continuing into ways to prevent and treat the disorder which leads to the Rett Syndrome, and families make important contributions to this work through sharing their knowledge and through fund raising.